CIDP, Uncategorized

I’m Back!

Sorry I have been away from my blog. Had some medical issues, painted and fixed up my office, and then my computer died. I so wanted to give up. After a small pity party and encouragement from my husband…I am back.

Medical Issues:

I have an autoimmune disease called CIDP – Chronic Inflammatory Demyelinating Polyneuropathy. It is the chronic version of GBS. I was first diagnosed with GBS – Guillain-Barre Syndrome in July 2011. In October 2011 my diagnoses was changed from GBS to CIDP. Here is a website for all information on GBS/CIDP

I receive IVIG – Intravenous Immune  Globulins – infusions for three days, every three weeks. The common side effects are flu like symptoms and migraines. I have notice that for me, when the weather changes the side effects hit me harder. With the weather changes here in Las Vegas, the side effects have hit me harder recently.

Make Over For Office:

Since I was down with side effects, my husband decided it was the right time to paint and fix up my office for me. I pick the paint color of Twilight Mist and the hubs did the rest. Here are some pictures.

My Office Pic 3This picture shows the wall color, sofa from Ikea, and the cork board & part of the white board.


My Office Pic 2This picture shows the magnetic board, white board and the cork board.

The hubby did a real good job. Loved how it turned out.

Computer Crash:

I started writing again for about a week and then my computer crashed. Then I had a bad reaction to the side effects of the IVIG. I was so disappointed and just wanted to give up. After a small pity party, I now have my computer back and I’m feeling better.

I’m excited to be writing again. Have a great day.


Sports, Uncategorized

Be Careful What You Say and Never Say Never:

I said I would never, ever wear one of these hats and I damn sure would never marry someone who did. Little did I know that the Fates took that as a challenge.


Corn Cob.jpeg
Nebraska Cornhuser Corn Cob Hat

In the 80s I was a big fan of college football. I always saw the fans of the Nebraska Cornhuskers wearing these corn cob hats. Honestly, I thought the hats were ridiculous. I told my parents that not only would I never wear one; I would never date or marry someone who would wear one. My parents laughed at me and my dad said, “be careful what you say. You never know who you may meet and marry”. I shook my head and with an attitude said, “nope, not going to happen”.

Fast Forward To 1999:

In 1992, I fell in love with the sport ice hockey. Still watched football, but hockey was my passion. In September 1999, I met a wonderful guy online and we had many things in common. One was that he liked and played the sport ice hockey. We met, fell in love, and married.

Here is where the Fates laughingly enter…what for it…he was from Omaha, Nebraska. Dear, lovable, mom and dad just had to remember my words and tell him. They handed him ammo to use against me for the rest of our marriage and he uses it too. Lol. It’s a good thing he’s a keeper and thankfully he doesn’t own a corn cob hat. Though I would wear one for him…maybe.

So be careful what you say because the Fates may make you look foolish and trust me they are sitting back with a bucket of buttered popcorn enjoying the show.

If anyone has similar stories and wants to share them, I would love to hear them. Have a great day.


Don’t Mess With The Thin Mints.

I never thought that a cookie could cause an argument and possible breakup between a couple. Surprisingly, I’m still around to tell you it is possible.

Now in my defense, while growing up I lived in the country and was’t involved with the Girl Scouts. If my mom bought Girl Scout cookies I don’t remember them. Sad I know.

My fiancé (now hubby) received Girl Scouts Thin Mints from his parents for Christmas 1999. This box of cookies started a war that is still on going.

Our First Disagreement Was About Thin Mints

Hubby always worked long hours during the New Year’s Eve celebration at a casino on the strip in Las Vegas. I was new to the town, no friends yet, and missing my family so I grabbed his box of Thin Mint. I only planned on having a few, but those cookies are so addicting and before I knew it the box was gone. Foolishly, I thought no problem I’ll just buy him some more cookies when I went to the store or online at their website.

About a week later, hubby, went looking for his Thin Mints and asked me where I put them. I told him ‘in my belly’ and that we needed to pick some more up at the store. The look I received from him was between utter shock and I’m going to murder you.

I was like what? Seriously what is the big deal? Needlessly to say I got a lesson on the Girl Scouts, how they only sell cookies during a certain time of the year, and that Thin Mints are their bestsellers. I was in the doghouse. He told his parents and anyone that would listen that I ate his last box of Thin Mints.

I felt bad…well only a little bit bad…and promised I would buy him ten boxes the next time the Girl Scouts were selling them. He finally said okay, but would never forget or forgive me for eating his Thin Mints.

Now He Hides the Thin Mints

It doesn’t matter who buys the Thin Mints, once hubby sees them, he is hiding them around the house like a squirrel hiding nuts for the winter.

I find them in the most bizarre places and always high up. Since I’m only five foot the hubby’s theory is to hide them high up where I can’t get them. Foolish man. That’s a challenge this wife can’t pass up.

Lesson – Don’t Challenge A Wife

I will admit that hubby is the bird feed owner trying to keep the squirrel out and I’m the squirrel going through the obstacles to get to the prize. Once the Thin Mint boxes are found, then I send him the ransom picture.

Thin Mints Ransom Note.jpg

Then I hide his Thin Mints for him to find, which he does. I would be embarrassed if he didn’t – he’s a Marine dammit and should find them.

This if what keeps the marriage exciting or maybe we’re just weird. Yeah weird explains us for seventeen years.